The SCID Homepage

SCID, Severe Combined Immunodeficiency, is a primary immune deficiency. The defining characteristic is usually a severe defect in both the T- & B-lymphocyte systems. This usually results in the onset of one or more serious infections within the first few months of life. These infections are usually serious, and may even be life threatening, they […]

Reciprocal Links, Webrings, and Other Informational Pages

The following links are to pages which have graciously included links on their pages to The SCID Homepage or provided support in other ways.

SCID, Angels for Life SCID – Hope Through Research IDF Giving for The SCID Initiative IDF SCID Initiative IDF SCID Newborn Screening Campaign X-linked SCID Resources NIH Gene Therapy Patient Information […]

About This Site

My name is Barb Ballard, and I am the parent of a child who has been diagnosed with SCID. If you are also the parent or relative of such a child, then you need little definition of SCID from me. You most likely already understand the life threatening severity of the disease.

My goal is […]

IVIG & GVH

IVIG Sites of Interest: Patient Notification System for the Plasma Products Industry This service notifies registrants of recalls and withdrawals of plasma products including IVIG. How to keep an infusion log PDF format – Very important information. All users of IVIG should keep their own infusion log. Availability of Immune Globulin Intravenous for Treatment of […]

Foundations

The SCID Initiative Driven by requests from the Severe Combined Immune Deficiency (SCID) community, this new dedicated fund has been created for the purpose of supporting SCID specific programs which include education, awareness, diagnosis, newborn screening, and the search for a cure. Learn more about The SCID Initiative and find out how you can make […]

Periodicals and Other Sites

Journals and Periodicals: BioMedNet The New England Journal of Medicine The Journal of Immunology Blood – Journal of The American Society of Hematology Science Online Online Journal Listing from University of Toronto PubMED search Specific Articles which are no longer available online, but which may be found in a medical library or may be purchased […]

SCID Email Listserv Support Group

Instructions for joining the SCID MAIL GROUP:

The SCID MAIL GROUP is now a listserv email support group. It is designed to help families dealing with Severe Combined Immunodeficiency or related diseases find a support network of similar families. This is a closed group, meaning only those with an interest in the subject because of […]

PID and SCID Specific Sites

The Immune System 10 Warning Signs of Primary Immune Deficiency from Immune Disease website Is it Just an Infection from the Immune Deficiency Foundation Our Immune System from the Immune Deficiency Foundation General Immunology Center for Environmental Health and Safety, Southern Illinois University Carbondale Blood Cell Deficiencies – from Bulletin for Experimental Treatment of AIDS […]

Awareness

A White Ribbon for SCID Newborn Screening

Primary Immune Deficiency Disease has been represented with a blue ribbon for many years. When the Immune Deficiency Foundation held its first Patient and Family Conference in 2001, many of the SCID families who had met online and shared each other’s losses and triumphs for […]

The SCID Initiative

The Immune Deficiency Foundation (IDF) is proud to announce the creation of a new project, the IDF SCID Initiative. Driven by requests from the Severe Combined Immune Deficiency (SCID) community, this new dedicated fund has been created for the purpose of supporting SCID specific programs which include education, awareness, diagnosis, newborn screening, and the search […]