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JUNE 2010:
WI Public Health Lab Identifies First SCID Baby Using New TREC Assay
The Wisconsin State Laboratory of Hygiene at the University of Wisconsin-Madison has identified the first baby with classical Severe Combine Immune Deficiency (SCID) as part of their newborn screening program. SCID babies, if undiagnosed, eventually develop severe life-threatening infections with a 100% mortality rate, usually within the first year of life...

MAY 2010:
Secretary of Health and Human Services Announces Addition of SCID to National Newborn Screening Standards
On May 21, 2010, Kathleen Sebelius, Secretary of Health and Human Services (HHS) announced the addition of Severe Combined Immunodeficiency (SCID) -- commonly known as bubble boy disease -- to the core panel of 29 genetic disorders -- as part of her recommendation to adopt the national Recommended Uniform Screening Panel...
U.S. says to screen babies for 'bubble boy disease'
"Bubble boy disease" is now part of national U.S. newborn screening guidelines, adopted by Secretary of Health and Human Services Kathleen Sebelius last week...
Approval Letter from Secretary Sebelius to Secretary's Advisory Committee on Heritable Disorders in Newborns and Children
The Secretary also adopts the Committee's recommendation to adopt the SACHDNC's addition ofSCID as a core condition to the Recommended Uniform Screening Panel, and related T-cell lymphocyte deficiencies to the list ofsecondary targets as a comprehensive entity as a national
standard and affirms the SACHDNC's updated Recommended Uniform Screening Panel to
screen for 30 core conditions and report 26 secondary conditions.

FEBRUARY 2010:
Letter to the Secretary, U.S. Department of Health and Human Services
Committee therefore recommends to the Secretary: The addition of SCID to the uniform panel, and related T-cell lymphocyte deficiencies to the list of secondary targets as a comprehensive entity, with the understanding that the following activities will also take place in a timely manner...

JANUARY 2010:
Immune Deficiency Foundation praises ACHDNC recommendation for SCID screening in newborns
On January 21, 2010, the Advisory Committee on Heritable Disorders in Newborns and Children voted unanimously to add screening for Severe Combined Immune Deficiency or SCID - commonly known as bubble boy disease — to the core panel for universal screening of all newborns in the United States.
Action Shifts to Statehouses in Battle to Save Babies Born with SCID
Vicki and Fred Modell, co-founders of the Jeffrey Modell Foundation, today called upon governors, state public health officials, and legislators, in all states, to implement screening of newborns with Severe Combined Immune Deficiency (SCID).

ARCHIVES:
April 2004: Duke: Newborn Testing for Immune Disorders Could Save Lives

 
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