SCID Initiative
The Immune Deficiency Foundation (IDF) is proud to announce
the creation of a new project, the IDF SCID
Initiative. Driven by requests from the Severe Combined
Immune Deficiency (SCID) community, this new dedicated
fund has been created for the purpose of supporting SCID
specific programs which include education, awareness,
diagnosis, newborn screening, and the search for a cure.
The creation of the IDF SCID Initiative is a new step
for IDF, as this is the first disease specific initiative
to be proposed by the organization. As another first,
IDF has developed an oversight committee for the Initiative
fund, comprised of community members with specialized
interest and knowledge specific of SCID.
Mission
The mission of the IDF SCID Initiative is four-fold:
- To expand public awareness of SCID and the treatment
options among families, physicians, and the general
public.
- To increase the probability of early detection and
treatment, with the goal to have universal newborn screening
for SCID performed on every infant born in all 50 states.
- To fund research efforts that will identify new treatments,
therapies, and ultimately a cure for SCID.
- To provide opportunities for affected individuals
and families to attend educational events with physicians
and other affected families.
Current Programs
- SCID Newborn Screening Campaign and the IDF SCID Newborn
Screening Toolkit
- Scholarship opportunities for SCID families to attend
IDF National and Regional educational programs.
- Partnership with SCID,
Angels for Life Foundation to raise awareness, benefit
research, and provide parent and family education for
those affected by SCID.
No matter what reason brought you to this website to
find information on SCID, I ask that you make a donation
to the SCID Initiative. No amount is too small when the
need is so great. Your donation can make the difference
that saves the life of a child.
Anyone wishing to make a contribution to the IDF SCID
Initiative can do so by donating
now online, or by mailing their contribution to:
IDF SCID Initiative
40 W. Chesapeake Avenue Suite 308
Towson, MD 21204
IDF is a 501 (c)(3) non-profit organization and your
contributions are tax deductible to the maximum extent
allowed by IRS regulations.
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